In the United States alone there are an estimated 2.5 million of us (ME/CFS/CFIDS) with 90% undiagnosed.
Despite being disabled by the experience, I have not lost hope and consider myself fortunate to be among the 10% that have been diagnosed.
I've been fortunate enough to land in the hands of a couple of skilled physicians and an incredibly gifted chiropractor & clinical nutritionist that recognized my experience and explored the possibility that my experience might fall under the category I've used to head this blog.
After years of suffering and questioning my own sanity (although deep down inside I knew my experience was not psychosomatic), a diagnosis came well over a year ago. I've been unable to work for years now and unable to tolerate exercise for well over 2 years.
And, yet, I have hope ...
I'm going to leave you with links to a number of articles that may support you:
Thanks for those links - I watched the video you recommended. One thing that surprised me was the high level of background music/sound which was really distracting for me, and made it difficult to focus. As the video is intended for people who are already struggling - this surprised me, as it must make it hard to listen to?
Anyway - that was just one of my picky observations - I am so glad you have researched and found these great resources for yourself (and others) - it's so good to know you/we are not alone!