Thursday, April 09, 2015
My story. What has made me what I am now. A long story but I have been asked how I have lost my weight so far, so I have decided to put it in a blog.
I will briefly say that nearly 31 years ago I was diagnosed with kidney disease when I was pregnant with my second son. Tried to look after myself but without the knowledge I have now.
about 2000 or 15 years ago I had endometrial cancer and had total hysterectomy.
Fast forward to 7 years ago to early 2008
My life changed forever. I got sick but they took about 15 months to find out what was the problem. I had Arnold Chiari Malformation. If you look this up it you usually die with this. I had a craniotomy in Nov 2009. This episode took a total of 18 months. In hospital for a few weeks then went to Rehab for 6 weeks. I had to learn to walk, talk, drink and eat again. I started off on a frame, progress to a 2 walking sticks, came out of Rehab on one stick but when I got home I refused to use this at home and only used it when I went out for balance. The Neurologist I saw told me after that he played God for me and took the risk as they rarely perform the operation because you usually die on the operation table.
This has left me with permanent damage to my vocal chords where one is damaged and one is paralysed. Balance is not as good as it was. Sometimes still have trouble swallowing.
But I am alive.
When I was in Rehab they found out I had kidney cancer. So in April 2010 I had my first partial nephrectomy. Again tried to look after me but without the knowledge.
It was about this time I got a referral to a gastric bypass surgeon. This takes a lot of time.
Joined Sparkpeople in September 2009.
In 2011 and 2012 a couple of little minor surgeries in creating a fistula and the year after raising this up to get ready for dialysis. Still not on dialysis and continue this fight.
In this time I was seeing the gastric bypass surgeon, the exercise physio and dietician.
In 2013 I had kidney cancer again in the opposite kidney and was operated on in Nov 2013 with another partial nephrectomy. So now I have ¾ of a kidney on the right side and a ½ on the left side. Of course with every operation I have had my kidney function has decreased and now I am in end stage renal disease. I have been there in Stage five for the last few years.
Since 2009 I have been trying to lose weight and managed to lose about 27 kgs.
Still seeing the gastric bypass surgery and this has taken a lot longer because of all the other operations, however I had this operation on the 5th November 2014. With the gastric bypass surgery I have lost a further 22.5kgs. Total loss so far is 49.5kgs. Don’t seem to want to get to the 50 kgs. This operation has made it easier but it is still hard work. You still have to exercise and watch what you eat. I do not regret having this operation, in fact it is the best decision I have ever made.
They did find out that I had high parathyroid function back in 2008, however it took until March 2015 to have this operation where they took 3 ½ parathyroid glands and ½ thyroid gland. When I went down to get the results I was told the news that I have 2 spots of cancer on the ½ the thyroid they removed. They told me it was totally unexpected. Not sure what they are going to do about the other side, if anything. I will find out on the 14th April. This is the 4th lot of cancer I have had. Thankfully at this stage I have had those bits removed and no further treatment.
From a fortnight before this operation till 3 weeks after I had put on 2.5 kgs due to not exercising, before was just too tired and after the op I was not allowed to exercise. In just over 2 weeks I have lost this weight.
From just after my operation I had starting changing my diet to try to go as chemically free as I can but since the diagnoses I have changed forever, no more trying, I need to do this. No more processed foods, gone off milk, grains, bread, white potatoes. I am trying to eat organic foods or home grown foods, has to be better than buying from commercially grown fruit and vegetables. I am very conscious of what I am putting in my mouth by eating whole foods. I have cut down my red meat intake because I have trouble eating this since gastric bypass op. Eat more chicken and fish. There will be more changes to come.
It was about 5 years ago that I made a conscious decision to buy Australia foods, not from Asia, and yes, I still make mistakes.
Before this last operation I had bought all natural personal products. I have now got rid of all household chemicals.
Now to where I am today, I feel great, less bloated, have energy to burn, for the first time in years I am now planning on what I am doing for today and also on future days. This has not happened for so many years that I forget when this happened before. I am cooking and making food and cleaning up after myself, again I can’t remember when I did this before. Doing so much more than I have for years, now I am thinking what I will be doing in years down the track, not wondering when I am going to die.
I am not the same person as when I started all this, I have grown a stronger and a more independent woman.
I am willing to try everything I can to try to change my outcome, if possible.
I am not going to let cancer rule my life.
Still battling the kidney disease but every day I fight is one more day to my life.
I am enjoying the time I am spending with my grandchildren and this is going to get better and better.
I could comfortably say that I feel better than I have for about 20 years.
Before I started this journey even the simple things were hard as I used to be tired from the moment I get out of bed until I went to bed but then I couldn’t sleep.
I find that I m moving faster than I was before.
I am keeping my housework up to scratch
I actually now like liking at myself and surprise myself how much smaller I am.
Sorry there is no magic formula to my losing weight and I have a long way to go but it is my journey to make and one I am willing to make. The end weight total I have made at this stage is so much closer but this journey I will be on for the rest of my life.
This is from a person who never thought I would see 50 and I am well beyond that and looking forward to 60 and beyond.
I still weigh my food and track when I can. I have now increased my exercising to more than I have for quite a few months.
I had blood tests today so it will interesting to see how I am doing then with all the decisions I have made since my last blood tests.
I must say that in writing this has been very therapeutic for me in seeing how far I have came and am now accepting what has happened. I know I am a better and much stronger person for all of this.
I am looking forward to the next chapter on my life.
I have already done some exercising and had a busy morning. Six months ago I would have still been thinking what if anything I was going to do for the day. Now I just do it.